Dear Deacon Νικολάος Διάκ
I have, the following issues of: remitting, relapsing MS, End Stage Renal Disease, Peripheral Neuropathy, Sciatica, Acid Reflux, Arthritis, Disc Issues, to name a few. I have high patella's, with greater difficulty of walking, and use a manual wheelchair to get around appreciatively. I am married to a wonderful husband, with one beautiful daughter. I am baptized Russian Orthodox, and Glory ever that God is my Saviour.To say the least, my conditions already baffles past, present physicians, [as past physicians did nothing at in regards to much my medical condition] since I drew away three years ago AMA, discontinuing dialysis at the hospital I was at (having already been on it a little over 3 years), nor have I had a transplant. I was told before I decided to [leave dialysis] by all my physicians, including at the time, my then nephrologist, and all the nurses, I could not leave, else I would be dead within a day or two. [Initially when I was hospitalized, my creatnine was at a count of 19, when I finally left dialysis, I brought it down to 4.3] Today it remains around 6.5. I have even managed to go without any medications, though there are times I wish I could take pain meds because of extremes of burning in my head, all down my back, legs, ankles, heels, feet. The burning starts in the afternoon, and can go on into the early morning till four, five in the morning. It is dreadful. At times the only relief I can take is a very hot shower, almost scalding applied to the areas where it burns, or get a rubber water pouch, fill them with very hot water, then place my feet, heels, legs on it directly, to somehow cancel out some of the deep burning. I also have electric shocks throughout my body. I don't know why this transpires. I have also been able to stop my gagging, and when I first had the issues of vomiting, I now am able to have complete control of this from transpiring. The acid reflux has subsided somewhat. I'm at a loss of how else to stop this terrible burning. It's like a coil that burns almost into the bone. [To my knowledge, I am not diabetic, but will be taking a test to confirm that in the next few weeks.] I have arthritis. It must be some kind of arthritis, because fingers are starting to knarl. I am 265 lbs, 5'8, and finding it more difficult to walk, and worry even more about the pounds advancing. [I had sought to see if I might be able to have surgery to reduce my weight, but my nephrologist stated he would not sign off on it, and refused saying it would endanger my life significantly.
My sleep is and continues to be interrupted. I lay awake much of the night into the wee morning hours. This has been transpiring over 14 years. I am exhausted to say the least. In the last month, I have sought acupuncture, in our city from the Chinese Institute on Acupuncture. It helps a little. I was told by my new nephrologist, I am very anemic, and have only 20% of kidney usage. He wants to give me shots to bolster my system, but I'm very reticent to do so. I feel much like a drowning person without a float in sight. I'm at wits end trying to find answers, plus make sure my insurance will cover me. I am age 63. I know I'm no spring chicken, but I would like to find a small bit of quality of life if at all possible.
I know much of one's life can also be determined by how fast one holds on to one's mental attitude, and even more for me my faith. My appreciation in this alone is due to daily prayers, as well thorough out my evenings into the early morning hours. Without it I don't think I would have survived. But, as well, the reality of addressing so many issues, is slowly catching up with me, for as sound as I am in facing all these daily almost round the clock issues, I must face the fact that I am only human, and cannot go on with these daily issues. Still, I am ALIVE by the Grace of God, and know it was He who gave me significant sign to leave dialysis initially. I was told to follow it to the letter, and at the end when my creatnine dropped to acceptable norms, I would leave dialysis and never return. It has been three years since I left dialysis, and within my heart, I can only believe and trust God. It was western medicine in the first place that allowed my health to plummet. I was given wrong medication, and ended up on dialysis. Then the same physician asked me to join his research project. I declined to join his research, telling him, first it was because of medical negligence I ended up on dialysis, and I certainly was not going to endanger my health further by joining his research. Today I have only my labs taken, and myself monitor what I eat, as well what else goes into my body. I take no medications, none whatsoever, not even pain medications, because my kidneys are limited to only 20%, and cannot process medications effectively. Amazingly, the same physician when confronted seeing all that I had to say, acknowledged that it was a miracle I was walking away from dialysis. It is all the more important to say, this same physician is an assoc. professor, and teaches nephrology ! ....He can't explain why I am able to have walked away. But I do. Truly God is all knowing, and because of God, I am alive. Truly miracles abound.
I thank you again for your kindness Deacon in receiving my post. I ask for all possible prayers for my health to return completely. I believe in miracles, and know I have already gone through many already. I still look for further prayers to see me through my present difficulties. Thank you. I remain most
Respectfully,
Tatia
Miracles In Our Time
Miracles In Our Time
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Lord Have Mercy! You have my prayers!
Lord Have Mercy! You have my prayers!
Miracles in Our Time!!
Dear Tatia ! WE all are praying for you !! Speaking of miracles, your great Faith in the Lord Jesus Christ , even as you carry such a heavy Cross, is so inspiring to me and is , in itself, a type of miracle I would say!! I ask for your prayers, In Christ, sinner, Nikolai
Dear Monarhist,
From now until God our Father calls me home at last, my faith remains steadfast. Without God, I should be nowhere, and without hope. He has been the miracle of my life, so all that has transpired after that is small indeed. The cross we carry is small when one thinks of the cross God's son carried on behalf of all of us. For it is He who went before us, to allow us to know how deeply he cared and loved us all. Let us never forget that He died for us, that we might live ! That is the main focus, and what we must never forget. In that must we find the inspiration to go forward, and do God's will. Forget not the Lord, and He will not forget you.
My prayers are yours, and all your prayers, I will continue in God's name. Lord have mercy, you have my prayers !
Tatia+